Should I Participate

This brochure includes information and questions that potential trial participants can ask to help them understand what being in a trial might mean for them. This includes questions to ask healthcare professionals, friends, family, and even questions to ask of themselves. It also explains the importance of making an informed decision.

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About the Brochure:

Deciding whether to join a clinical trial is a complicated matter that could affect a participant’s life. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide potential participants through that decision-making process.

This brochure was developed with feedback from members of the public, as well as subject matter experts. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public. The alternative text and accessibility features in this brochure were added after IRB review.

Topics include:

  • What does it mean to be in a clinical trial?
  • What is an informed decision?
  • Questions to ask yourself
  • Questions to ask a healthcare professional
  • Questions to ask family, friends, and others you trust
  • What should you do next?

Participant Bill of Rights

What you need to know before participating.

Any volunteer who gives his or her consent to participate in a clinical trial or who is asked to give his or her consent on behalf of another has the following rights…

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The alternative text and accessibility features in this brochure were added after IRB review.

2019 June Edition

To read the online article, The Real Reason Clinical Trial Participants are Called Medical Heroes, by CISCRP Founder Ken Getz, please click HERE.

To read the online article, Meet Jillian McNulty Cystic Fibrosis Patient and Clinical Trials Advocate, by MediaPlanet journalist Kristen Castillo, please click HERE.

A Very Special Thank You to Our Sponsors:

BENEFACTOR
Janssen
Merck
Pfizer
WCG
Bristol-Myers Squibb
Eli Lilly
Biogen

PATRON
Segal Trials
PMG Research
Allergan
Praxis

CISCRP would like to recognize and extend a ‘Thank You’ to Praxis for donating their pro-bono graphic design expertise to create the “Thank You to Trial Volunteers” advertisement.

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Upcoming Advisory Board Meeting

Interested in sharing your opinion on a clinical trial being developed? CISCRP is holding a half-day advisory board for Sciatica on July 31st, in Boston! At the advisory board, we will be discussing various ways to improve the design of a clinical trial for patients with Sciatica. If you have been diagnosed with Sciatica, or pain from lumbosacral radiculopathy and are interested in sharing your opinion on how to make a clinical trial better for other patients with the same condition, please contact Nova at NGetz@ciscrp.org  or fill out this brief questionnaire by clicking here to see if you are eligible.Thank you!

Letter from the Editor, July 2017

Dear Readers,

I hope you are all having a wonderful Summer and enjoying the warm weather!  I’m excited to share some updates and information about what’s been going on at CISCRP and what we’re looking forward to in the coming months.

In this edition of our newsletter we are honored to be interviewing Rhonda Monroe in our Medical Hero Spotlight.  Rhonda is an advocate for women’s heart health and shares her personal story of participating in a clinical trial for her heart disease.  We are also featuring two leading organizations, Biogen and TransCelerate, in this quarter’s Supporter Spotlight.  You can read more about their contributions to our latest Clinical Trials Supplement that appeared in the May edition of USA Today.

We are also including an article on CISCRP’s 2017 Perceptions & Insights Study to give you an in-depth look at how we conduct the study and analyze the results.  This study, done in 2013, 2015, and now again in 2017, is a staple of CISCRP’s Research Services and has become an essential tool for gaining a better understanding of public and patient perceptions of clinical research to improve trial participation and experience.

In other news, we are honored to thank and recognize WIRB-Copernicus Group® (WCG) for its recent support of CISCRP’s Medical Heroes 5K Run & Walk, held last month in Chicago.  Additionally, on Tuesday, June 20th, a day after the 5K, WCG held a reception, “Discovering New Depths of Clinical Research with WCG,” at the Shedd Aquarium in Chicago, in honor of CISCRP.  During the reception, WCG presented CISCRP with a generous donation to support CISCRP’s many patient education and outreach programs and initiatives.  We are so thankful to WCG for their continued support of our programs and initiatives.  You can read more in our press release about the donation and support.

In upcoming events news, CISCRP is gearing up to host several AWARE for All Clinical Research Education days in Jacksonville, FL, Newark, NJ, Chicago, IL, and Washington, DC this Fall.  These free community events are a chance for patients and the public to learn more about clinical research through presentations, exhibits, and access to free health screenings, food, and giveaways.  Be sure to check our Upcoming Events page for new AWARE for All city and date announcements, coming soon!

And if you’re a researcher or site looking for educational materials about clinical trial participation be sure to check out the CISCRP Store for brochures, posters, and videos that you can use to educate your patients about clinical research.  Interested in co-branding our brochures for use at your sites?  Contact me at rminnick@ciscrp.org for pricing and options.

I wish you all the best and hope you will keep CISCRP in your thoughts.

Thanks for Reading,

Rachel