Clinical Research for Black and African American People

Educational brochure about clinical research for Black and African American communities.

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About the brochure:

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.

 

We developed this brochure together with members of Black and African American communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of Black and African American communities through an anonymous survey. They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Black and African American participation in clinical research.

 

This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public. The alternative text and accessibility features in this brochure were added after IRB review.

 

Topics include:

  • What is a Clinical Research Project?
  • Why Black and African American Volunteers are Needed
  • Clinical Research Then and Now
  • How Black and African American Participants are Protected
  • Things to Consider Before Volunteering
  • What You Need to Know
  • Questions to Ask Before Participating in a Clinical Research Project
  • Learn More About Clinical Research

The following sources were referenced to create this brochure, and may have other useful information about clinical research, diversity, equity and inclusivity.

2020 Drug Trials Snapshots Summary Report | The Tuskegee Legacy Project: Willingness of Minorities to Participate in Biomedical Research | The Facts About COVID-19 Vaccine Clinical Trials Infographic | CISCRP FAQ’s | Tuskegee University USPHS Syphilis Study | The U.S. Public Health Service Tuskegee Study | The Tuskegee Legacy Project | Research Participants’ Bill of Rights | CISCRP Medical Hero Stories – Jameisha | CISCRP Medical Hero Stories – Shauna

Should My Child Participate

Deciding whether to enroll your child in a clinical trial can be complicated. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide parents and guardians of potential participants through that decision-making process.

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Topics include:

  • What are pediatric clinical trials?
  • How your child is protected
  • Potential risks and benefits
  • Questions to ask a healthcare professional
  • Questions to ask your child
  • Deciding if participation is right for your child
  • What should you do next?
  • Where to find more information

About the brochure:

We developed this brochure with feedback from members of the public, as well as experts in child and adolescent health. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure includes information and questions you can ask to help you and your child understand what being in a trial might mean for you. This includes questions to ask your child or dependent, healthcare professionals, friends, family, and even questions to ask of themselves. It also explains the importance of making an informed decision.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Should I Participate

This brochure includes information and questions that potential trial participants can ask to help them understand what being in a trial might mean for them. This includes questions to ask healthcare professionals, friends, family, and even questions to ask of themselves. It also explains the importance of making an informed decision.

English
View Brochure (Screen Reader Accessible) | Print Friendly PDF 

Spanish
View Brochure | Print Friendly PDF

Purchase Single/Quantity Brochures at our Store

Visit Store

About the Brochure:

Deciding whether to join a clinical trial is a complicated matter that could affect a participant’s life. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide potential participants through that decision-making process.

This brochure was developed with feedback from members of the public, as well as subject matter experts. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public. The alternative text and accessibility features in this brochure were added after IRB review.

Topics include:

  • What does it mean to be in a clinical trial?
  • What is an informed decision?
  • Questions to ask yourself
  • Questions to ask a healthcare professional
  • Questions to ask family, friends, and others you trust
  • What should you do next?

Participant Bill of Rights

What you need to know before participating.

Any volunteer who gives his or her consent to participate in a clinical trial or who is asked to give his or her consent on behalf of another has the following rights…

English
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The alternative text and accessibility features in this brochure were added after IRB review.