News & Articles

Medical Hero Spotlight: Nicole & Chuck Johnson, Navigating ALS

Chuck and Nicole Johnson were out celebrating her 37th birthday in June 2023, when Chuck mentioned his hands had been shaking during dinner. Nicole was somewhat concerned, but Chuck reassured

Input Needed On Using AI To Create Lay Summaries Of Trial Results

Lay summaries (LS) of clinical trial results play a critical role in improving transparency and accessibility in medical research by transforming complex scientific information into understandable content for the public

Medical Hero Spotlight: Kimberly Dorris, Graves’ Disease Patient Advocate

Diagnosed with Graves’ Disease In 2007, during a routine checkup, Kimberly Dorris received abnormal bloodwork results indicating lower-than-average levels of thyroid stimulating hormone (TSH). She was referred to an endocrinologist

Medical Hero Spotlight: Noa Greenwood, Canavan Disease Clinical Trial Participant

Canavan Disease Diagnosis Lee and Lori Greenwood welcomed their daughter Noa in August 2020. Born full-term and seemingly healthy, Noa’s first weeks of life passed without issue. However, at around

Medical Hero Spotlight: Michael Herman, Multiple Myeloma Clinical Trial Participant & Patient Advocate

Abruptly Diagnosed: Facing Multiple Myeloma In the Fall of 2012, Mike Herman and his wife Angela were taking their daily walk with their dogs through the neighborhood. When Mike dropped

Latest CISCRP Patient Survey Reveals Diversity Gaps, Yields 5 Tips For Improvement

Despite the FDA introducing a draft guidance document two years ago that outlined strategies to improve minority representation in clinical trials,4 recent studies suggest that racial and ethnic minority populations

Round-Up: Highlighting Recent Health Literacy Educational Materials

What is a placebo, Eligibility criteria, and How to find a clinical trial  CISCRP is dedicated to providing educational resources and empowering people through all steps of clinical research participation.

Community Trust: The Foundation for Fostering Diversity in Clinical Trials

Featured Article in our October 2023 Patient Diversity Campaign As an industry, we must recognize and address a complex problem: racial and ethnic minority populations have historically been underrepresented in

Media Awareness

For the past several years, CISCRP has implemented media campaigns throughout the year to build clinical trial awareness in the public and advocate for more diversity in clinical research participation. View articles and advertisement from the campaigns here